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Young People Living with Cancer: Implications for Policy and by Anne Grinyer

By Anne Grinyer

"This booklet is shouting out to each one who is concerned with younger people's melanoma. i am hoping they listen." Macmillan melanoma aid "This is an absolute 'must' learn for all those that deal with children with melanoma, together with the sufferers themselves, mom and dad, medical professionals, nurses, psychologists and all the being concerned professions." Professor Tim Eden, Christie NHS belief, Manchester, united kingdom "This booklet might be obligatory interpreting for all healthcare execs who paintings with children with melanoma and particularly for all execs who may possibly, at a few level, meet a solitary younger individual with cancer." Sue Morgan, St James's college health facility, Leeds, united kingdom What concerns are of so much crisis to teens residing with melanoma? How can a supportive care environment be demonstrated? How do we supply the optimal age acceptable care? This booklet makes use of unique information collected from in-depth learn to provide an account of what it really is prefer to be a young person or younger grownup dwelling with melanoma. those first hand money owed give a contribution to the perception essential to the availability of age acceptable caliber care. the consequences of those learn findings for coverage and perform also are on the topic of great counsel (2005). although based on a thematic research of interview info, the e-book additionally presents contextual and statistical info at the present occurrence of melanoma in teenagers. children residing with melanoma is key analyzing for future health execs engaged within the care of teens with melanoma, help staff within the future health prone, teenagers with melanoma, their households, teachers and scholars. The textual content deals a contribution to coverage and perform which could improve compliance and therefore increase results.

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Extra resources for Young People Living with Cancer: Implications for Policy and Practice

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You know, you can feel a bit intimidated really. So, it’d be nice to have a chat with somebody my age, see how they cope, if they’ve got kids as well or with their jobs, you know, how they’ve managed. (Kelly) So despite the ‘advantages’ of Kelly’s slightly older age, her greater level of independence and maturity, she still experienced feelings of isolation, believing that she was the only young mother to be undergoing such an illness and treatment. The stresses of being treated on an inappropriate ward were reflected on by Deborah, a staff nurse on the TCT ward: People who had been on adult wards at times said that it was depressing and miserable to be surrounded by old people dying .

I thought you had to be a lot older. When they told me testicular cancer was most common between 13 and 25 [I was really surprised] nobody had ever mentioned that. (Mark) Some of the cancers were diagnosed almost by accident; it was only chance that led Adrian, an apprentice of 18, to seek medical treatment for an injury as he had been unaware of any worrying symptoms: It was lucky that I actually come across it, because I was at work and I had an accident . . ’ And that’s when they picked it up, so they said if I hadn’t had the accident, I wouldn’t have found out about it.

And he said it could have been a number of things. I think one of his diagnoses was it could be flu . . but I think I would have known if I had flu, wouldn’t I? Anyway they sent me for some blood [tests] and they said, ‘Come back in a month, blah, blah . ’ So that’s what I did. But I started to get more [tired] and I mean I was working at the time as well and I had the little one. And I did start to feel more tired but l just put it down to having a child, you know, running round after them.

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