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The Governance of Genetic Information: Who Decides? by Heather Widdows, Caroline Mullen

By Heather Widdows, Caroline Mullen

This quantity maps the components of moral situation within the debate concerning the governance of genetic info, and indicates replacement moral frameworks and types of law to be able to tell its restructuring. Genetic governance is on the middle of scientific and clinical advancements, and is attached to worldwide exploitation, problems with commodification, commercialisation and possession, the options of estate and highbrow estate and matters approximately person and communal id. therefore the choices which are made within the following couple of years approximately applicable types of genetic governance may have knock-on results for different components of governance. in brief the ultimate resolution to 'Who Decides?' within the context of genetic governance will essentially form the moral constructs of people and their networks and relationships within the public sphere.

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16 L. E. Kay, Who Wrote the Book of Life? A History of the Genetic Code (Stanford University Press, 2000). 17 �������������������������������������������������������������������������������������������� Sarkar argues that ‘there is no clear, technical notion of “information” in molecular biology. ’ S. Sarkar, ‘Biological information: a sceptical look at some central dogmas of molecular biology’ in S. ), The Philosophy and History of Molecular Biology: New Perspectives (Dordrecht: Kluwer, 1996), 187–232.

Sarkar, ‘Biological information: a sceptical look at some central dogmas of molecular biology’ in S. ), The Philosophy and History of Molecular Biology: New Perspectives (Dordrecht: Kluwer, 1996), 187–232. 18 As Dretske puts it: ‘Communication theory does not tell us what information is. ’ Dretske, Flow of Information, 41. 15 T h e m e di u m a n d t h e m e s s age 23 layer of metaphor and simile. By treating molecular entities as if they were conscious subjects communicating with one another, the tropes appropriate to characterising human communication are then deployed to characterise certain of the causal relations that obtain amongst these entities.

Uk/acts/acts2004/en/ukpgaen_20040030_En_1. T h e m e di u m a n d t h e m e s s age 17 in a way that makes them part of a relevant filing system in hospitals, ­laboratories, tissue banks, universities, and so on. So, do these samples fall under DPA98? Let us be clear about what DPA98 applies to. DPA98 pertains to the acquisition, storage and use of ‘personal data’. 6 Do tissue samples contain information? There is a simple line of argument here. Tissue samples can be informative about a source subject’s medical traits, about her present or future health, in just the same way that an entry in a medical record can be.

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